Supatra Emily Adler's life, though brief, left an indelible mark on the hearts of those who knew her and even on those who have come to know her story from afar. Born on the 29th of March, 2005, Supatra's journey was one filled with joy, courage, and an inspiring battle against a formidable adversary. Her fight came to an end on the 5th of June, 2012, at the tender age of seven, in the warmth of her home surrounded by her loving family.

Diagnosed on the 26th of January, 2011, with Diffuse Intrinsic Pontine Glioma (DIPG), a rare and always fatal brain stem tumor, Supatra faced her condition with a resilience that was nothing short of remarkable. Despite the devastating prognosis and the intense treatment regimen that followed, including an experimental treatment in the USA, Supatra's spirit never waned. Her parents, Jorg and Punny, alongside her adored brother, Jason, supported her through this harrowing journey, witnessing her unfaltering bravery and enduring hope.

Supatra's story is not just a tale of medical battles; it's a narrative that underscores the profound strength of the human spirit in the face of insurmountable odds. Her approach to her condition and treatment, marked by courage, determination, and a positive spirit, serves as a beacon of inspiration. Supatra undertook numerous treatments, alternative medicines, and supplements without complaint, embodying an extraordinary level of strength and grace.

Beyond her illness, Supatra was remembered as a bright, smart, and quick-witted girl, whose presence brought joy and touched everyone she came into contact with. Her beautiful spirit and love for her family shone brightly, even in the darkest times. The special bond she shared with her brother, Jason, and the love within her family, painted a picture of a girl whose life, though short, was filled with moments of happiness, love, and laughter.

In their grief, Supatra's family took to sharing her journey and their experiences through a blog, with hopes of providing insight to other families facing similar challenges, and to fundraise for her treatments. This blog not only served as a means of communication but also became a space of solace, where the family could express their hopes, fears, and the reality of their situation. It was a testament to their unwavering love for Supatra and their determination to fight alongside her every step of the way.

The decision to pursue experimental treatment at the Burzynski Clinic in the USA highlighted the family's dedication to leaving no stone unturned in their quest to save Supatra. Despite the high costs and uncertain outcomes, their journey to the USA underscored their hope and their willingness to explore every possible option for Supatra's sake.

Supatra's legacy extends beyond her battle with DIPG. In the wake of her passing, her family's efforts to honor her memory through charitable endeavors reflect their commitment to making a difference in the fight against pediatric brain tumors. Donations in Supatra's name to Brain Tumour UK for specific DIPG tumor research illustrate a profound desire to contribute to the discovery of a cure, ensuring that her fight was not in vain.

The profound loss felt by Supatra's family, the moving reflections shared by her father, Jorg, and the outpouring of support from friends, family, and strangers alike, speak volumes about the impact of Supatra's life. Her story is a powerful reminder of the fragility of life, the strength found in the face of adversity, and the enduring power of love.

Written by: Alan Owen